A blog about TRAPS (Tumor Necrosis Factor Receptor-Associated Periodic Syndrome), living life with an incurable illness and learning to live well.
Monday, September 19, 2011
The Way You Wish
One of the things I found myself repeating, in almost every group work assignment was: I take a deep breath and I parent the way I wish I had been parented. And a few eyebrows would raise and someone would eventually come over at a break and ask what I meant by it.
I'm not shy about admitting my passion for Attachment Parenting and the belief I have ingrained in myself of Gentle Parenting. I began reading about Attachment Parenting when trying to become pregnant. I knew there was MORE out there than the shit handling of my own life. I knew there had to be a way to raise a kid that didn't involve him contemplating suicide as a teen.
And there it was. And it lead to internet searches for more information and more forum readings about Gentle Parenting. Not to say that I'm perfect and I strive to be flawless, but I have worked VERY hard over the past year and a bit on mindfulness and being present. I did a 19 week (57 hour) group course in Anger Management because I wanted to learn how to feel something. Normally I would start to feel something, anything, freak out and push it all down until it would just blow up.
And it was a common occurrence in women. You're so primed to look after others that it can feel strange to want to look after yourself, especially if you are a product of domestic violence or neglect. (Especially the neglect part.)
This is stolen from LLL:
"Initially, the phrase "gentle discipline" may evoke mushy, weak, absent-minded discipline. It may remind you of families with no boundaries, children controlling the parents, or selfish, impulsive children that no one wants to be around. Or perhaps you might think of parents afraid to say no, afraid of their children's tantrums.
This kind of parenting does exist, but it is best described as "permissive parenting." Fortunately, gentle discipline has nothing to do with this ineffective and problematic style of parenting. Gentle discipline is strong and effective."
Gentle Parenting isn't about kids running wild and manipulating parents. All kids run wild. And all kids do eventually learn how to manipulate the people they love the most. It's how we, as evolving creatures, work. But, gentle parenting is about putting the need of the moment ahead of MY need to feel validated and in control of the situation.
So, my 2 year old spilled pricey unhomogenized milk allllll over the floor. I wanted to scream, to slap her. To yell and throw the milk container at her. Those were the feelings I had. Right or wrong, that's the way I was working. But, I took a breath and asked: How would I have wanted someone to love me and discipline me?
And that's when I really understood what I was doing. And I use it in every situation. How would I like to be treated that I never once experienced? Kindness. Tolerance. Patience. It works with Adults and truly, ourselves.
Those 57 hours were some of the hardest I've ever experienced. Facing grief. Facing the past. Accepting and acknowledging neglect. And then finding the peace to want to move forward.
"Does it work?" was the most commented statement in response to my Gentle Parenting statements. Does it work? Sometimes. Yes. Sometimes. No. But it is ALWAYS keeping myself, my child and the situation benign and not dangerous. If you're hitting your child, you're not doing the right thing. If you're parenting by threat of physical violence and put downs, it needs to stop.
And that's before we throw in the extra demands of parenting with special needs.
Yes, your child has special needs. Yes, life is hard. I know how it can be. But, it's not ok. Not that all traditional parenting ends in violence. But, a lot of it does. Putting hot sauce on your child's tongue is abuse. I hate to break it to you.
Putting hot sauce on the tongue of a child wit Autism is abuse that needs to be reported. Not that this came up at my parenting course, but it has appeared in some of my internet searches on Autism and Discipline.
Imagine yourself as the small child. The walls are endlessly tall. People tower over you. They hold all the power and control. You are dressed, fed and do what people tell you to do. You act out because of whatever is going on in your insides. And someone hits you. Or threatens you. And tells you they're doing it because they LOVE you.
Now, think about how that child would want the reasonable, sane and loving adult to act. It's not a wish for permission to be a hellion on earth. But it's wanting someone to love you and set boundaries that are fair, proven and gentle. Kids don't stop hitting because you hit them. And they won't stop yelling because you yell at them to shut up.
Good places to start are with Dr. Sears and Wikipedia. This Blog is a nice place to visit as well. You can learn a lot here. And, though I do not subscribe to a religious way of parenting, there are always good insights here.
No, you don't have to eat organic or hug trees. You don't even have to want to give up driving a SUV. You don't have to breastfeed or want to breastfeed. You don't have to eat macrobiotic or cloth diaper. You don't have to wear your baby or home school. And, especially if you're like me, you can openly dislike The Secret, the Law of Attraction and all that bullshit. All it takes to parent peacefully is a commitment to sane, gentle discipline that respects the people involved.
Kids love without boundary. And they love you. Please love them.
About Me
- Jen
- I'm Jen and this is my blog. I'll take you through my diagnosis and life with an incurable illness. In 2008 I was diagnosed with Familial Mediterranean Fever but in July 2010 I was diagnosed with Tumour Necrosis Factor alpha Receptor Associated Periodic Syndrome. (google Familial Hibernian Fever) I'd really like to work as a fertility educator or an arthritis educator. I enjoy baking, trying to find 'good' Mexican food in NZ and my dream is to vacation in Tahiti. I'd trade money for Sleep, cats and warm weather.
Tumor necrosis factor receptor-associated periodic syndrome (TRAPS) is a rare multisystem genetic disorder characterized by unexplained periodic episodes or "attacks" of fever associated with additional symptoms including muscle pain (myalgia), abdominal pain, headaches and skin rashes. The specific symptoms can vary greatly from one person to another. The duration of the characteristic episodes can also vary, lasting anywhere from a couple days to one week to more than one month. Onset is usually during infancy or childhood. TRAPS is caused by mutations of the tumor necrosis factor receptor-1 (TNFR1) gene that encodes the 55-kDa receptor for TNF.
Labels
- ankylosing spondylitis (1)
- Answers (1)
- anxiety (2)
- Aserger's Syndrome (1)
- asperger's syndrome (3)
- attachment parenting (2)
- Autism (4)
- Baby Loss (3)
- Badger (1)
- Beluga (1)
- Blame (1)
- boobs (3)
- bottle feeding (1)
- carry on (1)
- cats (2)
- chemicals (1)
- Christmas (1)
- Chronic Illness (8)
- Chronic Illness Cat (2)
- chronic pain (4)
- cleaning (1)
- Co-Dependence (1)
- Colchicine (3)
- cooking (2)
- Depression (1)
- disability awareness (1)
- Doctors (4)
- dogs (1)
- domestic violence (1)
- drugs (5)
- dyslexia (1)
- eco (1)
- Eczema (1)
- Eeyore (1)
- FAIL (1)
- Failure (2)
- fall (1)
- Flare (2)
- gentle parenting (3)
- Grief (3)
- Guilt (3)
- halloween (1)
- Hedgehog (1)
- hip (2)
- Invisible Illness (11)
- Jen (3)
- Journey to Diagnosis (9)
- keep calm (1)
- Kidney (1)
- life (1)
- Loss (5)
- Mediband (1)
- medication (2)
- melatonin (1)
- memes (1)
- miscarriage (5)
- Miss S (4)
- MTX (1)
- neglect (1)
- Negotiating Pain (1)
- Notes to Doctors (5)
- October 15 (2)
- Optimism (1)
- Pain (10)
- parenting (1)
- Passing On (1)
- Pessimism (1)
- pills (1)
- Prednisone (5)
- pregnancy (1)
- public health system (3)
- Questions (2)
- Recovery (1)
- school (1)
- seroquel (1)
- song (1)
- Steroid (1)
- sticks (2)
- Survival Guide (1)
- tips (1)
- tired (1)
- transitions (1)
- TRAPS (3)
- twin loss (1)
- visible illness (2)
- wankers (1)
- weaning (1)
- xray (1)
- Yeti (1)
Start Here.
The Spoon Theory
* An Open Letter To Those Without Invisible Disability Or Chronic Illness
* You're Not Lazy, You're Sick
Lab Tests
* Autoimmune Disease Tests
* Autoimmune Labs 101
* Lab Tests Online (AU)
* University of Washington
* Pediatric Rheumatology
* ANA Test
* Autoimmune Lab Tests
* Laboratory Diagnosis
* Wrong Diagnosis
* Lab Tests Online
* Immco Diagnostics
Familial Hibernian Fever
* Wikipedia
* Traps
* In Children
* Patient Experiences
* NCBI
* The Cleveland Clinic
* Gene Dx
* Healthy Parent
* Q J Medical Journal
* British Medical Journal
* Anaesthetist.com
* NIAMS
* Wrong Diagnosis
* Cigna
* John Hopkins
* Arthritis Research
* TRAPS PDF
Familial Mediterranean Fever
* A good FMF Resource
* FMF -- Definitions
* Children's Health
* FMF from State University
Autoinflammatory Diseases
* British Medical Journal PDF
* Medscape
* NIH News
* Cell.com
* Autoinflammatory vs Autoimmune
Lupus
* Lupus UK
* Medicine Net
* Kid's Health
* Web MD
* UK Lupus
* Mayo Clinic
* Wikipedia
* Lupus Foundation of America
* Lupus Lab Results
Lyme Disease
* Igenex Lab -- Start Here
* Under Our Skin
* Diagnosis & Testing
* How to find a LLMD
* Finding a Doctor
* eHow.com Find a LLMD
* Lyme Disease Resource
* Linda's Lyme Disease Journal
Rheumatoid Arthritis
* Wikipedia
* Medicine Net
* Arthritis Foundation
* Mayo Clinic
* National Rheumatoid Arthritis Society
* WebMD
Still's Disease
* Still's Disease PDF
* International Still's Disease Foundation
* Medicine Net
* Wikipedia
* Mayo Clinic
* Medline Plus
* Arthritis Insight
* Arthritis Foundation
* About.com
Genetic Diseases
* Medicine Net
* Wikepedia
* Genomics
* Genetic Disease Foundation
* Medline Plus
Chronic Illness & Emotions
* Coping with Persistent Pain PDF
* Chronic Pain & Depression
* Managing Pain
* Chronic Illness Coach
* Cognition, Emotion & Chronic Illness
* Rest Ministries
* Living with Chronic Illness
* Understanding Emotions & Chronic Illness
* The Many Emotions of Chronic Arthritis
* Coping with Chronic Illness
* Illness & Anger
* Emotions of Chronic Fatigue
* Dealing with a Health Condition
* Emotions of Chronic Pain Management
* Experiencing & Expressing Emotions
* Self-Esteem for People with Disabilities
* Understanding & Treating Depression
* When is Anger a Problem?
* Expressing Anger?
* Overcoming Anger & Aggression
* Relaxaction
* Relaxation Audio Files
* How Counseling Helps
* Affirmations for Building Self-Esteem
* Understanding Emotional Responses
* Grief & Grieving
* Dr. Bob's Online Pamphlet Collection
Nutritional Support
* Anti-Inflammatory Herbs
Safety of Commonly Prescribed Drugs
* NSAIDs & Stomach Pain
Other Reads
* What is Heartbreak?
* Twin Loss NZ
* International Baby Lost Mother's Day
* The Pregnant Chicken
Memes
* Infertile Panda
* Chronic Illness Cat
Categories
- ankylosing spondylitis (1)
- Answers (1)
- anxiety (2)
- Aserger's Syndrome (1)
- asperger's syndrome (3)
- attachment parenting (2)
- Autism (4)
- Baby Loss (3)
- Badger (1)
- Beluga (1)
- Blame (1)
- boobs (3)
- bottle feeding (1)
- carry on (1)
- cats (2)
- chemicals (1)
- Christmas (1)
- Chronic Illness (8)
- Chronic Illness Cat (2)
- chronic pain (4)
- cleaning (1)
- Co-Dependence (1)
- Colchicine (3)
- cooking (2)
- Depression (1)
- disability awareness (1)
- Doctors (4)
- dogs (1)
- domestic violence (1)
- drugs (5)
- dyslexia (1)
- eco (1)
- Eczema (1)
- Eeyore (1)
- FAIL (1)
- Failure (2)
- fall (1)
- Flare (2)
- gentle parenting (3)
- Grief (3)
- Guilt (3)
- halloween (1)
- Hedgehog (1)
- hip (2)
- Invisible Illness (11)
- Jen (3)
- Journey to Diagnosis (9)
- keep calm (1)
- Kidney (1)
- life (1)
- Loss (5)
- Mediband (1)
- medication (2)
- melatonin (1)
- memes (1)
- miscarriage (5)
- Miss S (4)
- MTX (1)
- neglect (1)
- Negotiating Pain (1)
- Notes to Doctors (5)
- October 15 (2)
- Optimism (1)
- Pain (10)
- parenting (1)
- Passing On (1)
- Pessimism (1)
- pills (1)
- Prednisone (5)
- pregnancy (1)
- public health system (3)
- Questions (2)
- Recovery (1)
- school (1)
- seroquel (1)
- song (1)
- Steroid (1)
- sticks (2)
- Survival Guide (1)
- tips (1)
- tired (1)
- transitions (1)
- TRAPS (3)
- twin loss (1)
- visible illness (2)
- wankers (1)
- weaning (1)
- xray (1)
- Yeti (1)
Blog Roll
- Be Careful What You Pray For
- Built in Birth Control
- Holy Pee Stick, Batman!
- Leaps of Faith
- Lupus Ranting
- Not Standing Stills Disease
- Recurrent Miscarriage
- Rheumatoid Arthritis Guy
- The Healing Plate
- The Post Divorce Chronicles
- the Stirrup Queen's Completely Anal List of Blogs That Proves That She Really Missed Her Calling as a Personal Organizer
- Understanding Invisible Illness
0 comments:
Post a Comment